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Following the concerns raised by the report introducing the Parliamentary discussion on the General Data Protection Regulation, we have published a petition ("Don't Stop Research on Rare Diseases!") to the European Parliament and to the EU Council.

Read more on the reasons for this petition in your preferred language here:

NEZASTAVUJTE VÝZKUM V OBLASTI VZÁCNÝCH ONEMOCNĚNÍ!!! - Čeština (cs )

N’EMPÊCHEZ PAS LA RECHERCHE SUR LES MALADIES RARES! - Français (fr)

KEIN STOPP BEI DER ERFORSCHUNG SELTENER KRANKHEITEN! - Deutsch (d)

Μην Εμποδίσετε την Έρευνα για τις Σπάνιες Παθήσεις! - Ελληνικά (el)

NON IMPEDITE LA RICERCA SULLE MALATTIE RARE! - Italiano (it)

NIKAR NE USTAVITE RAZISKOVANJA REDKIH BOLEZNI! - Slovene (sl)

¡NO PARES LA INVESTIGACIÓN DE LAS ENFERMEDADES RARAS!!! - Spanish (e)

DON’T STOP RESEARCH ON RARE DISEASES! - English (en)

SPASITE ISTRAŽIVANJE RIJETKIH BOLESTI! - Hrvatski (hr)

Please sign the petition and spread the word!
http://www.change.org/en-GB/petitions/don-t-stop-research-on-rare-diseases-2