Epirare Team

Contact

Please contact: Domenica Taruscio Italian National Centre for Rare Diseases Italian National Institute of Health Viale Regina Elena, 299 00161 Rome – Italy Phone +39 06 4990 4016 Fax +39 06 4990 4370

Presentations

Rome, 21 October 2013 Aims of the International Workshop Domenica Taruscio   European Union action in the field of Rare Diseases Antoni Montserrat Moliner   Toward a European Platform for Rare Diseases Registries Simona Martin   The EPIRARE proposal for a EU platform Luciano Vittozzi   E-Rare Daria Julkowska   EU Research Infrastructures Filippo Belardelli …

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Newslist

2013 October RARE DISEASE AND ORPHAN DRUG REGISTRIES Second edition of the International Workshop Date:October 21-22, 2013 Venue: Italian National Institute of Health – V.le Regina Elena, 299 – Rome (Italy) September RARE DISEASE AND ORPHAN DRUG REGISTRIES The International Summer School Date:September 16-20, 2013 Venue: Italian National Institute of Health – Rome (Italy) details …

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