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Associated Partners

Domenica Taruscio, Luciano Vittozzi, Sabina Gainotti, Yllka Kodra, Emanuela Mollo, Martina Greco
Coordinating Team - National Centre for Rare Diseases, Istituto Superiore di Sanità (Italy)

Rumen Stefanov, Tzonka Miteva
Information Centre for Rare Diseases and Orphan Drugs-BAPES (Bulgaria)

Franco Cavallo
University of Turin (Italy)

Manuel Posada de la Paz, Manuel Hens, Ana Villaverde, Ignacio Abaitua
Istituto de Salud Carlos III (Spain)

Yann Le Cam, Monica Ensini
EURORDIS

Herman Van Oyen, Elfriede Swinnen, Viviane Van Casteren
Public Health and Surveillance – Institut Scientific de Santé Publique (Belgium)

Fabrizio Bianchi, Michele Santoro, Michele Lipucci
National Council of Research (Italy)

Sophia Tzala
Hellenic Centre for Disease Control and Prevention (Greece)

Angela Brand, David Townend
Institute for Public Health Genomics, University of Maastricht (Netherlands)

Maria Elena Congiu
Ministry of Health (Italy)

Pilar Soler Crespo
Ministry of Health and Social Policy and Equality (Spain)


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